The Walker family will be traveling to Washington DC and Arlington, Virginia for a week this summer. We will be attending the CMD Scientific and Family Conference. This conference will give Liam and Lydia time to socialize with other children who have Muscular Dystrophy and their siblings. It will also give Mark and I the
Today is the 5 year anniversary of the day our lives would be changed forever. When Liam was first given the diagnosis of LGMD the future was very scary, and unwelcoming. I was blind to what life would look like with a child whose body would constantly be changing, needing more assistance, and failing him.
Liam is doing very well these days. We met with his team of doctors in late September and they said Liam is doing very well. His arms and ankles are contracting more every day, but we still stay vigilant with his nightly stretches to combat these changes. Liam is thriving in second grade as he
Liam has always been responsible for contributing in the household chores. He is responsible for keeping his room clean, helping to clean up the playroom and odd jobs around the house. This may seem pretty standard to most, and honestly, it is standard here too. We just require a little more planning. Since bending over
Liam has had his powerchair for sometime now. He proved to be a very precise driver, with mature spacial sense. His school principal even remarked on how impressed he was with Liam’s driving skills. Liam also recognizes that this tool doesn’t solve all his problems. It’s bulky, the world is not set up
I’m sure some of you, our devoted followers, wonder how we discuss Muscular Dystrophy with Liam. We approach this conversation much the same way you might discuss sex with a child. You answer their questions, but don’t go further than what they ask. When they are ready for information they will show you. With Muscular
I sat quietly and watched. I watched as my son, with the body of a boy void of all baby fat, played quietly in the bathtub. I promised myself that I would not rush him, I would wait until he was ready to get out. I would wait until the water became cold and the
I grew up with two older brothers, and I always imagined that I would have three children in the family that I created. Two big brothers and a baby sister. I always liked having big brothers who would keep me in line, tease me relentlessly and love me unconditionally. This was my idea of a
Liam received his new power wheelchair a couple weeks ago. He was so excited to get his new chair, and go as fast as possible. He told me he wanted to feel the wind in his hair and he wanted to be faster than his friends. When we put in the order with his team
Going on a vacation with small children takes a lot of planning, flexibility and patience. Travel is something that I see as a requirement for life. The world becomes a little bit smaller with each passing mile. New people and new places show you that we are all the same when it comes down to