The Walker family will be traveling to Washington DC and Arlington, Virginia for a week this summer. We will be attending the CMD Scientific and Family Conference. This conference will give Liam and Lydia time to socialize with other children who have Muscular Dystrophy and their siblings. It will also give Mark and I the chance to learn new strategies on how to manage this disease as it progresses.
This conference is particularly exciting for us because it is focused on Liam’s subtype! We have no idea what his progression will be, but having the opportunity to meet with the few other families in the world who know EXACTLY what we are dealing with would be an absolute gift.
During this trip we plan on spending additional time with family in the area and sight seeing in the capitol. We will be driving because we are not interested in wrestling with airline issue with Liam’s wheelchair and then needing to rent a wheelchair accessible van.
Conference Registration costs: $316
Hotel Costs: $390
Kids Camp (activities for Liam and Lydia that are separate so we can discuss some of the more frightening parts of the disease. : $210
As with all other aspects of living with a chronic disease we are doing our best to make this trip fun filled and full of happy memories. Thank you for helping with the financial burden and for giving our family a chance to learn more about LGMD.
Thank you for any help you may be able to give us.