We need your help. Our family has been without a wheelchair accessible vehicle for nine months. It is now time that we purchase a new vehicle and we need your help with the staggering cost of converting a van to be wheelchair accessible. We are not asking for assistance with the cost of the van,
Originally published as ‘Fortunate’ in 1964 my favorite children’s book was renamed ‘What good luck! What bad luck!’ in 1969. I am the proud owner of a tattered and torn copy of this cherished story. Young Ned experiences all the ups and downs that life has to offer. What good luck!Ned got a letter that
Home. Living with a disability comes with many challenges. One of the most common challenges is mobility. WIth the generosity of our amazing friends and family we were able to fully fund a van that would accommodate Liam’s powerchair and help us to keep him on the move and active in the world. We are
A year or so ago, Liam’s doctor recommended applying to have our family granted a ‘Dream Vacation’. He told us that this would be a great age to go since Liam is old enough to show his own interests and still young enough that he is able to participate in many activities. We were granted
“Would you like to go to a Cincinnati Reds game this weekend?” “Sure, sounds fun!” For most families this might be the extent of the conversation that goes into planning a simple outing to a baseball game. For our family, it takes just a bit more. Step 1: Find seats that are both wheelchair accessible
Surprisingly–or perhaps, if you know me, not-so-surprising–this is my first post to this site. I’ve come to think of it as Betsy’s blog, for no reason other than she’s the principle author of each post. Also a first: Last week, for the first time since we first visited Cincinnati Children’s 5 years ago to discuss
The Walker family will be traveling to Washington DC and Arlington, Virginia for a week this summer. We will be attending the CMD Scientific and Family Conference. This conference will give Liam and Lydia time to socialize with other children who have Muscular Dystrophy and their siblings. It will also give Mark and I the
Today is the 5 year anniversary of the day our lives would be changed forever. When Liam was first given the diagnosis of LGMD the future was very scary, and unwelcoming. I was blind to what life would look like with a child whose body would constantly be changing, needing more assistance, and failing him.
Liam is doing very well these days. We met with his team of doctors in late September and they said Liam is doing very well. His arms and ankles are contracting more every day, but we still stay vigilant with his nightly stretches to combat these changes. Liam is thriving in second grade as he
Liam has always been responsible for contributing in the household chores. He is responsible for keeping his room clean, helping to clean up the playroom and odd jobs around the house. This may seem pretty standard to most, and honestly, it is standard here too. We just require a little more planning. Since bending over