Home. Living with a disability comes with many challenges. One of the most common challenges is mobility. WIth the generosity of our amazing friends and family we were able to fully fund a van that would accommodate Liam’s powerchair and help us to keep him on the move and active in the world. We are
A year or so ago, Liam’s doctor recommended applying to have our family granted a ‘Dream Vacation’. He told us that this would be a great age to go since Liam is old enough to show his own interests and still young enough that he is able to participate in many activities. We were granted
“Would you like to go to a Cincinnati Reds game this weekend?” “Sure, sounds fun!” For most families this might be the extent of the conversation that goes into planning a simple outing to a baseball game. For our family, it takes just a bit more. Step 1: Find seats that are both wheelchair accessible
Surprisingly–or perhaps, if you know me, not-so-surprising–this is my first post to this site. I’ve come to think of it as Betsy’s blog, for no reason other than she’s the principle author of each post. Also a first: Last week, for the first time since we first visited Cincinnati Children’s 5 years ago to discuss
The Walker family will be traveling to Washington DC and Arlington, Virginia for a week this summer. We will be attending the CMD Scientific and Family Conference. This conference will give Liam and Lydia time to socialize with other children who have Muscular Dystrophy and their siblings. It will also give Mark and I the
Today is the 5 year anniversary of the day our lives would be changed forever. When Liam was first given the diagnosis of LGMD the future was very scary, and unwelcoming. I was blind to what life would look like with a child whose body would constantly be changing, needing more assistance, and failing him.
Liam is doing very well these days. We met with his team of doctors in late September and they said Liam is doing very well. His arms and ankles are contracting more every day, but we still stay vigilant with his nightly stretches to combat these changes. Liam is thriving in second grade as he
Liam has always been responsible for contributing in the household chores. He is responsible for keeping his room clean, helping to clean up the playroom and odd jobs around the house. This may seem pretty standard to most, and honestly, it is standard here too. We just require a little more planning. Since bending over
Liam has had his powerchair for sometime now. He proved to be a very precise driver, with mature spacial sense. His school principal even remarked on how impressed he was with Liam’s driving skills. Liam also recognizes that this tool doesn’t solve all his problems. It’s bulky, the world is not set up
I’m sure some of you, our devoted followers, wonder how we discuss Muscular Dystrophy with Liam. We approach this conversation much the same way you might discuss sex with a child. You answer their questions, but don’t go further than what they ask. When they are ready for information they will show you. With Muscular