“Start a blog!” they say.
The voices of my most trusted friends keep echoing in my mind. “Tell your story, Betsy” they repeated.
Here I am, with our story. My words, my thoughts, but our story. I am taking a real risk by putting it all out there. The risk of showing my soft underbelly. The risk of exposing the pain involved with raising a child with a degenerative, fatal disease.
From what I can tell, the risk is worth it. Sharing our heart ache, our triumphs, our lives with those interested is definitely therapeutic. Day 1 of this “new normal” after Liam was diagnosed proved to me that I would rely on the listening ears of loved ones. I talk my way through the confusion, grief and pride. Boy, oh boy, I do love to talk!
I plan on this blog being a perfect place to update you on how Liam is doing. I know that you love Liam, and I’m so thankful for such caring friends and family.